I will miss you Tess very much and regret the loss to your family and to this community, far too early. You were the epitome of stoical, throughout your more recent ill health. For us ciliopathists, you were incredible for your networking and getting out there in support of affected families, at our meetings you always had great energy and ideas, so much support and insights freely given out in help for everyone. This is a great loss for PKD and beyond, you will be much missed by all.